The DHPS Foundation
12030 Sunrise Valley Drive
Suite 405
Reston, VA 20191
Phone: (703) 437-9720
Follow us on Twitter @cureDHPS
For general questions about the DHPS Patient Registry, please contact the Registry Administrator:
Demi Fragale Fino
Social Media: @cureDHPS
Visit the National Organization for Rare Disorders home page at rarediseases.org.